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Parents fight to raise awareness of rare disease 'cluster'

Families affected by a rare inherited disease say they have had to "scramble" for information.

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'My girl can't walk or talk': Searching for answers in Wales' rare disease cluster

2 hours ago

Oscar EdwardsBBC News

Rachel Cowley's daughter Jessica was like any other 10-year-old until she started having seizures.

Now aged 20, Jessica is unable to ...