Parents fight to raise awareness of rare disease 'cluster'
Families affected by a rare inherited disease say they have had to "scramble" for information.

'My girl can't walk or talk': Searching for answers in Wales' rare disease cluster
2 hours ago
Oscar EdwardsBBC News
Rachel Cowley's daughter Jessica was like any other 10-year-old until she started having seizures.
Now aged 20, Jessica is unable to ...