'My girl can't walk or talk': Searching for answers in Wales' rare disease cluster
Families affected by a rare inherited disease say they have had to "scramble" for information.
Rachel Cowley's daughter Jessica was like any other 10-year-old until she started having seizures.
Now aged 20, Jessica is unable to walk or talk, and Ms Cowley fears she will die in the next few years.
"I hope when the time comes it is quick," said ...